Monday, May 11, 2020

POST MOTHER’S DAY 2020

I’d hoped to have had my niece and her guys visit on our patio, yesterday, but my level of fatigue was so intense that grooming much less dressing proved impossible for me.  While zooming with our kids at 3pm, which always lifts my spirit, I was still in my pjs, and afterward, my greatest accomplishment was getting myself to the bathroom aided by my walker and back to bed.

Thank goodness, triple digits had decreased enough to see me enjoying two hours of fresh air neath a bright blue sky while indulging in a lengthy nap on our patio swing before zooming with our family.

‘Small stuff’ offers my brain’s natural pleasure center sound reason to feel fulfilled as long as serious illness concerning my precious family is held at bay.

My organ systems must still be all mixed up with so many meds churning around inside me.  Hopefully, with no appointments at Mayo, next week, whatever’s going bonkers will straighten itself out, day by day.  Our bodies are good that way.

Yesterday, after zooming, Will asked what I’d craved for dinner.  My spontaneous reply was steak.  His immediate response (we’ll order from Capital Grill) saw my smile spread from ear to ear!

Expensive, yes.  Will said I’m worth it.  πŸ₯°. And we both knew I’d enjoy last night’s scrumptious feast, over the next three days.  In fact, thinking about delicious left overs awaiting in the fridge sees me salivating, right now!
πŸ™‹πŸ»‍♀️❤️🌈🌻

Sent from my iPad

Sunday, May 10, 2020

HAPPY MOTHERS DAY 2020

Yesterday, we enjoyed time spent with Steven and Ravi—they on our patio, Gramma and Papa sitting on folding chairs behind glass panes of our Arcadia doors, where we four interacted via cell phones.

Ravi loved the surprise cheetah family figures, which having been untouched by human hands for several days, awaited her arrival.

Thank goodness, the temp outside has decreased from triple digits to double since a poor, little drowned prairie dog was lifted from the bottom of the spa, so Steven and Ravi chose to forgo cooling down with a dip as had been planned.

I feel so fortunate each time Steven and Ravi come to play.  Though they stayed for over an hour so as to continue to interact with Papa, my walker and I felt need to depart for my bed after we four had enjoyed each other for about 45 minutes, which proved to be a stretch for my lack of energy

No doubt, Nulasta, chemo, steroids and anemia are mixing my body systems up.  Hopefully, next week will be better as no appointments at Mayo appear on my calendar.

Though I’m missing my West coast crew something fierce, picture my spirit smiling lovingly, having spent time with Steven and Ravi’s exquisite, heart shaped face, yesterday ...
Thank goodness, we’ll be zooming with everyone, this afternoon
Wishing a happy, healthy Mother’s Day to one and all!  And remember, need to heed quarantining shall pass ...



πŸ™‹πŸ»‍♀️❤️πŸ₯°πŸŒˆπŸŒ»

Saturday, May 9, 2020

ITS A BEAUTIFUL DAY IN THE NEIGHBORHOOD

Good Morning, Dear Friends—here there, everywhere,
Upon arising to the gentle sound of tinkling bells heralding in coming texts, I’m glad to know the sun is shining, here and there, freeing folks with cabin fever from walking on treadmills in favor of being out and about six feet apart, during the day.

It’s 9:30 am, and I’m just awakening, now😴

Though chemo, steroids, Nulasta (to stimulate bone marrow production of new well-balanced blood cells to combat anemia) and who knows what else remains mixed up inside me, fatigue continues to reign supreme, my mornings starting out in slo-mo with the rest of the day following suit.  Even so, my spirit feels sound reason to smile as Will and our family are well; the sky overhead is blue, triple digit temps have decreased to double digits, and my deeply comforting, royal blue cushioned swing welcomes my arrival in my magic place where repose beckons me to sway, gently, back and forth, as though cradled, so you’ll hear no complaints from your friend, Annie, since change for the better is in the air, at least for today.

As a special treat, a friend and neighbor, who baked toll house cookies, our favorites, especially for Will and me, just dropped those sweet confections at our front door following her hike with a friend in the heat.  Yum.  This baker extraordinaire whips up her tasty treats masked and doubled gloved.  She chose blue chocolate chips ala Frozen, in case Steven and Ravi plan to play in our patio spa, this afternoon. . 

As that is the plan at hand, Steven and Ravi will cool down in our patio spa, this afternoon, while Gramma and Papa happily interact with our son’s and grand daughter’s sweethearts from behind our glass paned Arcadia doors, feeling ever so grateful to have our loved ones within eyesight, placing our craving to gather both into a group hug aside until pandemic fear has passed—which it will, over time..

Other than pandemic crises, outside, and a critter named Leiosarcoma inside me, all is well, today, in our little corner of the world.  And being that we each live one day at a time, I’ll push publish, having ended this post on a realistic up note.
πŸ™‹πŸ»‍♀️❤️🌈🌻Annie
Now, that’s what I call a hot dog, by golly!

Friday, May 8, 2020

MY PEACEFUL DESERT RETREAT ALL ABLOOM

Over time, the beauty of nature, nurtured lovingly by our hearts, becomes a peaceful place of nourishment for our spirits.  After enjoying photos posted on Facebook of my cousin’s beautiful garden, I felt spurred to share photos (taken from our colorful cushioned, two seater swing) of the desert in bloom, nurtured lovingly throughout our patio retreat.  As everyone has need of a magical place of repose and renewal, this is mine.πŸ™‹πŸ»‍♀️❤️🌈🌻
(Though my mountain cannot be seen, right behind the lush greenery in full bloom, it stands majestic in clear sight of our home drawing my eyes above our garden retreat toward positively focused visions of whatever is yet to gladden our hearts once reason to quarantine has passed, freeing each of us, the world over, to release such deep sighs of relief as to throw open our doors, legs eagerly running outside, heartfelt energy bursting with need to sing aloud and dance, together, at last, feeling blessed beyond measure to have come through this time of global crises with our beloved family’s good health intact!) 







Thursday, May 7, 2020

IMPULSIVITY IS EMPOWERED TO UNDERMINE MY PROCESSOR’S NATURAL ABILITY TO DETERMINE CLARITY

As yesterday's post proved in need of lots of mind bending work concerning clarity,
I’m glad to say much of that work was completed, late last night, in hopes of enticing you to review insights, which make much more sense, today, than had been true when my wording had reflected the complexity of thoughts, which, having filtered readily from subconscious storage into the conscious portion of my mind, had not yet been productively re-organized for public consumption.  So here I am apologizing for having published insights prematurely, which upon reflection proved so raw as to have been served up half baked.
Your well-meaning, yet impulsive friend,
πŸ™‹πŸ»‍♀️Annie
PS
If any mind bending glitches undermining clarity remain in
My previous post, please include them in my apology as
Yesterday saw me sitting in the legs up chemo chair from
1 to 6pm, editing away, while steroids were also dripped into
My port, so that upon awakening! this morning
My processor continues to feel discombobulated from a sense of
Dragging chemo fatigue riding a chemically induced high, simultaneously
And thus, would I like to set the record straight by clearly stating that
My having chosen to document how surreal it feels to
Seek out clarity in real time while
Infusions of chemo, working toward eradicating
A vicious tumor while anemia leave sme short of breath, is
Asking quite a lot of my brain, every day, so
Thank you, brain for continuously aiming
Your best shot at lassoing
Every insight-driven bulls eye that
Pops up, even those which tend to gallop through
My hard working processor in a fuzzier state than
The current condition of my conscious awareness can grasp
And being that the two hour time difference between
Houston and our desert home saw our phone awaken
My wearied think tank much too early, my brain just
Hung a gone fishing for insights on my forehead
Meaning, I’m about to try for more shut-eye before
Heading off to Mayo for the shot that stimulates
My bone marrow to produce a well balanced variety of
Blood cells to replace those that my buddy
Chemo inadvertently shoots full of holes ... ohhhm
Zzzzz 😴

Wednesday, May 6, 2020

INSIGHTS ADDED TO—MY ‘GO-TO’ ATTITUDES DURING TRYING TIMES

During this trying time of global crises, I’m intuitively guided to follow this plan—
1. Employ a conscious attitude of relaxation during quarantine—Ohhhm ...

2. Remind myself upon awakening to consciously live life one day at a time in
    full appreciation of our family’s precautionary measures to
    maintain their good health

3. Focus attentively upon my good fortune to openly absorb Will’s protectional love
    and his professional expertise as well as the abundance of love stoking
    my spirit’s heartfelt inner strengths, via cyberspace

Since achieving the trifecta above must be bolstered by heightening degrees of self awareness, this proactive, three step plan had been my mindset’s go-to way before the current C-19 pandemic arose.

In fact, this plan had begun to filter out of subconscious storage, intuitively, ever since Sept. 2019 when life threatening symptoms of my illness were finally correctly diagnosed after a year’s span of time had been bungled by doctors whose practices kept brilliant minds too busy to think out of the box, and thus each time my chest pain and fatigue were duly noted, my chart was refiled and placed out of sight and out of mind until I’d reappear to see another of my internist’s associates or her PA, being that my doc (having been on extended maternity leave after birthing her third child) was unavailable for several months during which time my lack of diagnosis had expanded towards a year’s time in which I’d left their offices feeling confusion and frustration suppressed (not repressed) behind my too patient smile, which kept forgetting that the squeaky wheel gets the oil, and thus have I learned that in addition to absorbing the trio of attitudes listed above—all based in positively focused realism weaving peaceably together to buoy my strength of spirit during times that try my mind—my smarts have need to up their game even when my mental and physical energy, upon which I depend, prove to be a no show, meaning that I must remain aware of the fact that a deficit in energy does not work in my favor.

Sometimes ya gotta see yourself squeaking like an insignificant little mouse caught in a mental fog that feels like a cage when in truth there are no bars stopping me from discovering the key to unlocking the closed mindset, which diminishes the capacity of my intellect so as to see myself through my doctors’ narrowed scope.  I’ve gained insight into freeing my intelligence to drive home so as to clearly re-costume myself in muscles made of self respect bulging respectfully through spandex tights, a long sleeved tee and cape so as to fly like a bolt of condensed lightening into this office of mega medical knowledge and make better use of my three step trifecta than ever before by dialing up my expectations of this brain trust to listen more attentively so as to, suddenly, congregate before me with interest concerning my case peaking as if my voice has been self-empowered to raise each doctor’s antenna so naturally that my plight is heard with a greater sense of detailed clarity than ever before.  Whew!

Whomsoever thinks that trying times are easy for strong spirits to maintain a patient hold onto common sense while watching authority figures spinning on a gerbil’s wheel, getting no place but worse—please think again!  Remaining level headed while your health spins off its axis in the midst of a distinguished medical brain trust proves to be a Herculean feat!  Don’t even get me started on what happens when my specialists at Mayo and my surgical team in Houston have need to communicate clearly with each other via my medical portal concerning my ongoing medical care while chemo preps me for heart/lung surgery.  If Will did not choose to be their super attentive go-between, the most brilliant of minds, being based inside of human heads, would continue to complicate matters beyond our belief.

On a sound stage in Hollywood every cyber conversation between both medical teams would have been well scripted and directed.  In real life, my transformation from Gidget mouse to green-eyed Maureen O’Hara Mighty Mouse might not have changed for the better until after my correct diagnosis was duly noted within my chart once my internist, returning from a lengthy maternity leave in Sept. of 2019, saw my annual physical on her schedule, and so a chest X-ray was scheduled as usual, suggesting that none of us thought out of the box until a simple X-ray result popped the lid off my pain and fatigue, exposing a 7cm mass of unknown origin, which had been offered a year’s time to devour two lobes of my right lung, thus solving the mystery of my pain and fatigue—or so we’d thought, because three different radiologists, one in a hospital ER, misdiagnosed my X-Ray result as pneumonia —BTW—I’m sitting in the chemo chair, right now.

Had my chest pain been on the left, medical minds would have surmised a test as being necessary to check out my heart.  However, once pneumonia was misdiagnosed as the mystery malady of my right lung, it seems as if the absence of wheezing, coughing or fever would have highlighted the diminished attentiveness of these bright medical minds in whom I’d entrusted my continued good health as my age continues to advance.

Seriously, upon reflection, hindsight suggests that not one doc considered the fact that pain and fatigue, being my only symptoms, should have raised a red flag to further check into my lungs once the shocking results of a routine X-ray offered medics and patient reason to remain firmly boxed into the hum drum confines of the ‘ordinary’ once my annual physical, blood test, chest X-ray and a slight onset of wheezing was seen as a matched set, as in a game of Go Fish.  This mass, being 7cm in size should have compromised my ability to breath, big time.  Any yet, it had not at that earlier time.

My internist.  A brilliant, busy young woman with two small children and an infant surmises—Annie, I detect a slight wheeze.  Your blood test indicates infection.  A large mass is covering 2/3 of your right lung!  My shocked reply—You mean where the pain has radiated for a year?  Yes, it is clearly seen.  OMG!  You mean my pain is not imagined?  And excessive fatigue is not based in my advanced age?  My reaction indicates self awareness readjusting.  Holy cow! Thank goodness.  Finally I am hearing something that makes sense!  Or so I believe.  At that moment, I felt as if an authority figure had just declared me sane.  Suggesting that I was not yet the supreme authority figure  concerning my level of awareness when my sanity was in question within my own mind!

As to the docs who made up the practice, well, suddenly they had sound reason to feel alarmed, so the brilliance (that’s not sarcasm, brilliance is not infallible to mistakes in professional judgment) of the medical partnership arose as one—Annie has a serious— pneumonia!  After several weeks of treatment with no change for the better (still no fever or coughing.  Just a hint of wheezing, newly detected only by stethoscope as well as on-going pain and fatigue).  Hmmm.  Perhaps it’s Valley Fever. VF

Following several weeks of treatment for VF with no change for the better (still no fever or coughing.  Just thatbhint of wheezing, pain and fatigue) my sons strongly suggested a consult with a pulmonologist (who saw me STAT at my internet’s request).  One look at the X-ray saw her face turn grim.  She arranged for a CT, STAT, the surprising results of which verified the rarity of a sarcoma attacking my right lung.  Rarity because these tumors are known, far and wide, to most commonly manifest in the uterus, and my uterus has been absent from my 76 year year old body since I was 34 years old, based in the fact that I’d undergone three emergency abdominal surgeries, during the two year period of time, which had followed and related back to a life threatening, head on collision that came close to putting out my lights, one rainy night in the month of March, 1978.  Whew!

As you come to know my history, little by little, you can choose to ride sidekick through many serious surgeries, each of which my hearty spirit rode like a bronc rider whose hide did not feel need to toughen no matter how many times my inner strengths were taxed by having been bucked into the dust, and though I did end up dusting off my spirit in intensive care, four times thus far—my smile and intuitive, three step recovery plan experienced sound reason to become ever more deeply ingrained within the well balanced, sound health of my brain—thanks to my upbringing neath the loving tutelage of my parents and both grammas, all of whom had instilled my hearty spirit with developing along the lines of a well mannered, deeply loving, fearless, straight shooting, high achieving, cow girl, whose natural vulnerabilities, wobbling shakily, subconsciously, remained so well hidden behind my defense system’s wall of denial that I believed only in my super strengths, as did everyone who’d thought to know me well—until such time as the pain bared was not mine to bear with a smile made of solid grit, but rather my mother’s emotional pain and that of my youngest son’s physical pain, both of which, occurring simultaneously, blew Joshua’s horn directly into my hidden vulnerabilities for more than a year before my self protective defensive system’s wall of denial crashed, crushing my host of super strengths like a bunch of broken bones neath a mountain of reality that saw a river of deeply troubled tears swirl my balled up self into the safe haven of my bed, where, with my magic cape pulled up over my head, the super duper, three step plan, above, which had actually begun to intuitively develop while my sons’ young imaginative minds were naturally challenging my think tank to step up my creative game plays, which saw need to heighten patience so that during a sound night of sleep, an insight driven game plan, enhanced by common sense, would write itself on the blackboard of my mind by morning time when my spirit would awaken re-energized, stoked with hope to meet the challenge of coaching my trio of sons through yet another brand new day—knowing we each live one day at a time.

BTW, if that last paragraph left your head spinning, just think of what living through that confounding time and then condensing every day of that year of mental agony into one paragraph must have demanded of my writing prowess ...

And though my patience, creativity and research worked its magic with my having consciously modeled the calm thinking patterns that I’d conscientiously hoped to mold within the absorptive, intelligent minds of three loving young boys, over eighteen years time, before irrational power plays got out of hand on both sides, there was no plan that could remold the mindsets of a woman of more than ninety, who, though she’d been one of my best friends, over my entire lifetime, could not get past her defense system’s wall of denial, which refused to offer my mother access to tap into her anger over the death of her her life’s partner, my father, and being that I was the safest person in her life, unbeknownst to us both, guess who played the scape goat upon whom her subconsciously repressed angst dropped for several years until the day before her death—and I’ve thanked God for that merciful reprieve, every day, since.

Oh dear—my memory bank is opening too many doors and windows into classic examples of life events that sorely tax everyone’s host of personal strengths, so details of those harrowing sad stories, each of which ends happily when patience, love, mutual respect and self respect hold hands with professional expertise until The End writes its intuitive self, nourishing the blendship of true lasting friendship to arise, like the Phoenix, from yesteryear’s cooled ashes in full bloom, just as is true of my peaceful desert garden retreat, each spring.

You see, in addition to my strength of spirit handling invasive infusions of chemo while quarantining during this very real C-19 global crises, my organ systems continue to do battle with an unlikely sarcoma that stymied my doctors for a year after the little bugger had silently invaded my lung, uninvited, and over time, here is what has happened as trying times, over my lifetime blend, together:  Now that everyone I know has been quarantining for many weeks, just like me, I often forget to attribute my need for quarantine and infusions of chemo to the fact that my body has been and still is wrestling with a highly rare cancerous tumor for more than a year and a half ... and my spirit is still smiling, feeling fully stoked, daily, with and an abundance of love buoyed by my life long addiction to hope ...

On the other hand—while it’s been my choice to protect my life by staying home for many months, I realize that most of those who began to quarantine, more recently, are aware of the life or death nature of C-19, which, being mandated by well informed governmental officials to quarantine, is not yet a matter of personal choice.  Like every virus, this one cares not about our personal lives or who lives or dies.  However, unlike most viruses that run their course until our immune systems get the best of them, this one is not only highly contagious but is also a cold hearted enemy, which if not contained, will continue to suck the very life out of its global host.  Whew!  Guess the lid, covering sensations of repressed frustration brewing deep inside my head, just popped.🀯

I miss my family,
i miss my friends!
I miss my freedom!
I miss my good health!

Ahhh!  That feels better!  Having identified my disconnect from the depths of my discontent, my defense system has sound reason to relax while my think tank rebalances inner need to readjust frustration, secreted from my conscious mind, with patience necessary to accept the bald truth that everyone must face, that’s especially true of those whose home state is the same as mine, being that numbers of cases of C-19 are continuing to climb rather than leveling off and declining—and who knows when that change for the better will take place?  Not me.  Not you.  Not my neighbor.  Not the mayor.  Chief of Police.  Not the governor.  Not trump.  Nor gun toting folk in Michigan—for Pete sake! ...

As is true whenever my think tank is conversing, heart to heart, with a true friend, I am experiencing feelings of relief though nothing has changed except for the fact that I’m being true to myself, straight through to my core ... so please make no mistake—tis not Pollyanna’s voice you hear when a straight shot of reality implores you to consider the maturity levels of your decisions concerning..

Staying home
Staying safe.
Staying well.
Staying balanced and sane just as I plan to do the same during
This is crazy, surreal quarantining time when
Angry folks, fearing poverty, are out and about toting guns—
Please unload your weapons before today’s pain is exacerbated to
The point of no return concerning civilized life ...
πŸ™‹πŸ»‍♀️❤️🌈🌻

Sunday, May 3, 2020

11. LETS MAKE GOOD USE OF HISTORY TO IGNITE IMAGINATIVE PLAY IN AN OTHERWISE HUM DRUM DAY

As need for quarantine is extended indefinitely, life beyond our front doors is becoming ever more screwy, which is why I believe parents throughout cyberspace may appreciate innovative ideas that may stimulate their creative genes to encourage family life to remain as harmonic as possible.

But first, here’s a thought of serious concern.  It has come to light that people toting guns are beginning to act scary screwy about need to extend quarantining, and I believe we need to take a moment to consider discussing this next fact with our homeschooled children, grades four through high school:  People who harbor defensive fear of being overwhelmed by poverty can’t help but obsess over personal need to reopen our sagging economy.  These people are blinded by fear from envisioning the horrific numbers of those who will continue to fall ill to C-19 and die if quarantine lifts too soon. These folk are blind to the fact that in the absence of social distancing, the escalation of deaths is sure to reinforce common sense to stay home so as to diminish the risk of being counted amongst those families already ravaged by the tag team of C-19 and The Grim Reaper knocking indiscriminately at one door after another ...

As the hours of each day at home seem to l e n g t h e n, let’s make good use of our intelligence by calling forth creativity, thus initiating a sense of playfulness while homeschooling as families participate in imaginative moments of follow the leader—for example—what if a home schooling parent, being the family pied piper, stimulates each child’s imagination to eagerly direct members of the family to participate in a homemade play where parents act first as guides and later as supporting characters or audience while their children’s minds are actively encouraged to create costuming followed by acting out a scene from history concerning whatever timeframe each one’s class is currently studying.  (Many years ago, in ancient times when I taught fifth grade, my class, which studied US history, took turns creating a ten minute play, each week.)

For example, Week one would see one child choose to be director and main character.  The next Monday would see another child take a turn of leadership.  And so on, each child being the leader over the span of a week.

In a small family unit, one week could be designated as Mom’s turn or Dad’s to choose to go to a child’s history text so as to edify herself/himself of factual info before encouraging the children to follow the parental lead character as youngsters assume supportive roles while, week by week, the family acts out gripping moments in history with extended family being the audience via zoom.  Or perhaps, an audience made of stuffed animals offers all that’s needed.

Initially, the planning of each ten minute play would be discussed with decorum during a family meeting in which everyone—making good use of a talking stick to pass respectfully from one to another—takes turns discussing how best to conjure up the ten minute play for the next week, and if this new and playful way to ‘study’ remarkable characters in history appeals to you then this change for the better may be all that’s needed to ignite imaginative thinking necessary to lighten up and liven up the hum drum existence of every day study sessions in your home.

Just a thought based in the success oriented method with which I chose to make American history come alive for my class of fifth graders when I’d thoroughly enjoyed assuming the role of their pied piper. πŸ™‹πŸ»‍♀️❤️

PS
My niece’s family, comprised of four children and two adults, made talking sticks out of durable cardboard, which each individual decorated to his/her liking.  Each time it was a child’s or adult’s turn to be the lead in the next ten minute historical play, that child’s talking stick was put to good use during each family meeting in which plans for that child to assume the role of director and main character were eagerly, yet respectfully, discussed around their kitchen table.

If a child wants to be a director but not a main character, he/she can freely offer that role to another.  In short, no hard line rules existed except for two—firstly—mutual respect defined every step of the entire creative process beginning at the kitchen table until the curtain descended upon each ten minute play.  And secondly—everyone participated in brainstorming sessions concerning how best to mix fun with each other into learning.

Let’s end today’s post by chewing on one more tasty morsel of food for thought:  If kids invite their families to play productions in school then why not produce plays for families to enjoy during home schooling?

Sure does make sound use of common sense to this pied piper—Vonce a teacher, alvays a teacher!
πŸ™‹πŸ»‍♀️❤️😊🌈🌻Annie